Abstracts
3427240
(#38) Tardive Dyskinesia Educational Efforts With United States-Based Patient Advocacy Groups: An Interim Analysis of Digital Engagement With Caregivers
Abstract: Background: Individuals at risk for tardive dyskinesia (TD) and their caregivers often do not recognize TD symptoms. This study aimed to assess whether educating caregivers about TD can prompt at-risk individuals to pursue further evaluation with healthcare professionals (HCPs).
Methods: TD-specific educational content and survey items were developed in collaboration with patient advocacy groups. Via online platforms, caregivers of adults at risk for TD (without a TD diagnosis) viewed a one-time 12-minute digital educational session. After viewing (baseline) and at 6 months, caregivers completed a survey to assess knowledge retention, care recipients' current daily experiences with TD, and intent for HCP follow-up.
Results: Most caregivers (n=234) reported that care recipients had a mental health diagnosis (94.0%) and/or prior exposure to antipsychotics (68.4%). At baseline, most caregivers noted that their care recipient experienced symptoms and impact of TD, including unwanted movements (70.5%), trouble chewing or swallowing food (67.9%), and trouble holding things/dropping items more frequently (57.3%), and 75.2% planned to encourage their care recipients to meet with an HCP for further evaluation. Of 200 caregivers surveyed at Month 6, 53.0% reported that their care recipients met with HCPs for further evaluation, and 34.0% reported that their care recipients received a TD diagnosis by an HCP.
Conclusions: Within 6 months of caregiver-directed TD education, more than half of at-risk care recipients met with HCPs to discuss TD, and more than one-third received a TD diagnosis. TD-specific education for caregivers may help close the gap in diagnosis for individuals at risk for TD.
Short Description: Individuals at risk for tardive dyskinesia (TD) and their caregivers often do not recognize TD symptoms. To assess whether educating caregivers about TD can prompt at-risk individuals to pursue further evaluation with healthcare professionals (HCPs), caregivers received TD-specific educational content online. Caregivers reported that by 6 months after viewing this content, more than half of their at-risk care recipients had met with HCPs to discuss TD, and more than one-third had received a TD diagnosis.
Name of Sponsoring Organization(s): Teva Branded Pharmaceutical Products R&D LLC
Methods: TD-specific educational content and survey items were developed in collaboration with patient advocacy groups. Via online platforms, caregivers of adults at risk for TD (without a TD diagnosis) viewed a one-time 12-minute digital educational session. After viewing (baseline) and at 6 months, caregivers completed a survey to assess knowledge retention, care recipients' current daily experiences with TD, and intent for HCP follow-up.
Results: Most caregivers (n=234) reported that care recipients had a mental health diagnosis (94.0%) and/or prior exposure to antipsychotics (68.4%). At baseline, most caregivers noted that their care recipient experienced symptoms and impact of TD, including unwanted movements (70.5%), trouble chewing or swallowing food (67.9%), and trouble holding things/dropping items more frequently (57.3%), and 75.2% planned to encourage their care recipients to meet with an HCP for further evaluation. Of 200 caregivers surveyed at Month 6, 53.0% reported that their care recipients met with HCPs for further evaluation, and 34.0% reported that their care recipients received a TD diagnosis by an HCP.
Conclusions: Within 6 months of caregiver-directed TD education, more than half of at-risk care recipients met with HCPs to discuss TD, and more than one-third received a TD diagnosis. TD-specific education for caregivers may help close the gap in diagnosis for individuals at risk for TD.
Short Description: Individuals at risk for tardive dyskinesia (TD) and their caregivers often do not recognize TD symptoms. To assess whether educating caregivers about TD can prompt at-risk individuals to pursue further evaluation with healthcare professionals (HCPs), caregivers received TD-specific educational content online. Caregivers reported that by 6 months after viewing this content, more than half of their at-risk care recipients had met with HCPs to discuss TD, and more than one-third had received a TD diagnosis.
Name of Sponsoring Organization(s): Teva Branded Pharmaceutical Products R&D LLC
